Ours wasn't a typical turkey day, but we are enjoying the Thanksgiving weekend. We are in St. George at an RV park and the weather has been nice, around 60 degrees. We packed up on Thursday morning and drove to Cedar City where we stopped to have our Thanksgiving meal at a restaurant. In St. George we found a nice RV park. The boys have enjoyed riding their bikes around the park. There is also a swimming pool here, so David took the boys out while I am writing on the computer.
The appointment on Wednesday with Dr. Shehadeh went fairly well. He said the CT scan indicated that my liver was slightly larger than the last scan. However, my liver enzymes and blood counts have been stable, even slightly improved. So, the Dr. proposed that I take 2 more of the three week treatment cycles, with the same medicine, just a slightly higher dose for the oral pill. Then, he wants to do a PET scan, which is more sensitive and give us a better idea exactly what is going on. So, even though I'm not looking forward to being sick for another six weeks, at least we know that the medication is keeping my disease under control. In fact, the scan indicated that my lungs are clear, so that is nice to know.
I have mixed feelings about doing more treatment, especially when I have a hard time in the winter months to begin with. There is something about Dr. Shehadeh that makes me want to follow his advice. I listen to him and he reassured me that I did a really good job of tolerating the last 3 cycles. After all, I didn't end up with an infection or even with a blood transfusion, the whole time I was undergoing treatment. As time goes on, I'm even learning to anticipate some of the side effects and keep them under better control.
This weekend, our family is together in our trailer, just the 5 of us snuggled up with our dog and watching movies and playing games. Today was our first day here, so we did some exploring around town and we drove around the bluff and up to the airport, which was a gorgeous view of the temple and the town, with more red rocks in the far distance. We found out about a Christmas gift expo, so we went down there to pick out our gifts, literally! Brenton, Jonny and Nathan are all getting Ipod shuffles for Christmas. I got a new mop and sweep system and David got a bottle of special cleaner, for computers, cds, jewelry, glasses, etc.
We came back to the trailer for dinner. Just like last weekend, David has been spoiling me by cooking all the meals and having the boys help him clean up. Every one of the boys, even Sandi, has come to snuggle with me in the big queen bed. I feel grateful to feel well enough to travel. I have been struggling with nausea up until the day we left. Dr. Shehadeh did give me some samples of a strong acid reducer and I think that has helped improve my nausea considerably, also with taking my medicine with food and little by little during the day, instead of all at once. It is nice to take a break from feeling sick. I won't have any more chemo until Wednesday.
Emilee
Friday, November 28, 2008
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8 comments:
I am SO happy to hear your appointment went well! I have been checking your blog to since Wednesday night to get the report - I have been on pins and needles. I couldn't be happier for you.
Your Thanksgiving sounds like it was perfect. I'm glad you were able to get away and spend some time with your family. Sounds like your "boys" are taking good care of you.
I look forward to hearing more about your trip when you get back. Take care of yourself.
Cindy
I'm so glad that you are in St.George. I love it down there! It is beautiful...I love the red rocks as well. We just got home from Houston and had a great time there. We enjoyed the 70 degree weather and cousins for the kids to play with. They had so much fun. I'm relieved to hear things went well at the doctor on Wednesday. We are always thinking of you and praying for you and your family. Can't wait to see you!
Good for you, Emilee, good for you! The results of the latest scan are testament to your hard work and perserverance. Something to be grateful for on Thanksgiving. I'm sorry that you have to keep fighting, but your new doctor really does sound like he knows what he's doing and that you're in good hands. We'll pray that you continue to have courage and comfort in the face of this adversity.
I'm also very grateful that in spite of the harshness of the treatments they do seem to be working! YEAH!
In connection with GIVING THANKS, a UC Davis professor, Robert Emmons, has done extensive research on the physical value of being grateful. Just writing down five things for which you're grateful every day can improve your well-being. This exercise has worked for chronic pain patients, cancer patients, and even on college students! His work in gratitude is groundbreaking in the field of positive psychology.
Go to this web address for more: http://psychology.ucdavis.edu/labs/emmons/.
Laurie's comment here is VERY accurate & appropriate.
Emilee, GOOD FOR YOU!!!!
Always LOVE from DAD
Emilee, I am very happy to hear of the encouraging results from your scan. It is definitely a marathon not a sprint or maybe more like a battle. I am so proud of you and your family! You seem to have achieved a balance with doing everythingyou can to endure your disease and treatment but at the same time, treasuring times when the disease does nottake over your life and you can feel a smidgen of normalcy.I pray for you and your dear husband, children, parents and siblings. I know how difficult it is for them also.
I glad to hear you're finding joy in nature, the season, places and events. These are great ways to feel more alive. Keep it up. Keep smiling.
Love, Ann Marie
Hi Emilee! I saw your Mom and Dad today at Church and your Mom said you are going to start another round of treatments this next week- (Wednesday?) I'm glad that you're feeling better-I know what you mean about taking too many pills at once-I got sick last week from the same thing-I'm gonna space them out and with a litle food, too. I'm sure glad you all got out for a little trip-it sounds like satisfaction! My Family went on many interesting trips when I was a Kid-we thououghly enjoyed most of them. I'll stop for now, take care Emilee! We Love You and will always Pray for You and Your Family! Bill Black
Emilee,
Sorry we weren't able to meet up with you. Life is super hectic when my whole family gets together. Hope you had a nice time and enjoyed the warm weather.
Great news about the test results. Hang in there.
Meggin
Great news! Keep up the good work! As always, it is wonderful to read your up-dates. Thanks! Ulrike
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